You have guest access to browse, login, or register.

WelcomeAboutShare With CareHelp
Share Your Story. Participate in online discussions about premature babies, start a blog, or just meet other NICU families. March of Dimes  
HomeCommunity CenterShare Your StoryParent to ParentGet Involved
 
SHARE HOME >  SHARE YOUR STORY >  ALL SHORT STORIES >  SHORT STORY ARCHIVES - 2006

My Angel Paul

laurageb - 01:37pm Mar 10, 2010 EST

I wanted to share my story, hoping that talking about it helps.

My nightmare started Feb. 21, 2010. I woke up this Sunday morning and was not feeling Paul move like he usually did. We got dressed to go to church, but on the way decided to go to the hospital to get checked out.

When we got there they put me on the monitors, and to our relief Paul had a very strong heartbeat. We were there about an hour or two when the doctor came in and said that he had to be delivered right now. Apparently although he had a good heartbeat, it was flat and non-reactive. So in a matter of minutes they were delivering my baby 9 weeks early. I was at 28 weeks, and had a planned c-section for 37 weeks.

We knew of a heart defect that Paul had, but we were expecting that with surgery he would fine. Because of this known heart problem and his prematurity the hospital I was at transferred Paul to Vanderbilt Childrens Hospital NICU. As all this was going on Both Paul and I went into what is known as DIC. I was bleeding to death and so was my sweet baby.

After Paul arrived at the NICU the doctors examined him, did ultrasounds of his brain and his heart. Paul was suffering from two grade four bleeds in his brain, plus bleeding else where in his body. He was not expected to live thru that first night. So they finally got me stable and transferred me to Vanderbilt. When I finally got to see paul he was doing a little better, but was still very sick.

The next morning Pauls doctor came in and gave us the worst news possible, that there is no chance of Paul surviving. His heart defect was alot worse then originally thought, and his heart was not compatible with life. Also his brain bleeds had pretty much taken over his brain. We needed to make the decision to continue with or withdraw care. This was the hardest decision I have ever made but knowing because of his heart the machines were keeping him alive I knew what I had to do. We made the decision to withdraw care. So on Feb 22, 2010 our precious baby Paul went to be with our lord.

They brought Paul to my room so we could hold him, and our other children could see him. There they took out his breathing tube, and I held him until he passed, about five minutes. I live every day since wondering if I made the right decision.

The genetics doctor called last night to tell us Pauls test results are in, can we come in for a meeting. As much as I want to know what happened, I can not bring myself to go back to the childrens hospital.

With all this with Paul, my health took a downward spiral, and almost three weeks later I am still recovering from the birth and problems that followed.



  OutlineAll MessagesOlder ItemsOldest ItemsNewest ItemsNewer Items

4NMommy - Mar 10, 2010 1:50 pm (#1 Total: 3)  

 

I am so so sorry

I am so sorry for the loss of your precious Paul. Nothing can prepare us for what we go through with the loss of a child, and to have to make that kind of choice makes it even harder. We too had to make that decision for our Nora. There will always be the what ifs, but there is also the known. Our angels no longer feel pain, they no longer feel hunger, they are in complete peace and are alway with us. Your Paul is with the Lord and is looking over you and your family. I pray for your recovery and we are always here for you at Share.

Thinking of you,
Amelia

stacyat - Mar 10, 2010 3:51 pm (#2 Total: 3)  

 

Hello and welcome to Share. I am so sorry to hear about the loss of your precious angel Paul. Like Amelia said, nothing can prepare us for the rollercoaster of losing our sweet babies. I lost my twin girls Emilyn and Hailey a little over three months ago. Thinking of you as you begin this journey.
Stacy

KHolley - Mar 12, 2010 7:04 am (#3 Total: 3)  

 

Welcome to Share. I am so heartbroken for you. I hope that you are able to find some peace during this hard time.

Katie



  OutlineAll MessagesOlder ItemsOldest ItemsNewest ItemsNewer Items


To post, please login or register.



 
We are pleased to provide a forum for sharing, and remind everyone that the viewpoints, opinions and actions expressed here are those of the individuals themselves, and may not reflect March of Dimes policies or positions. Information on this site does not take the place of guidance from your health care provider. Always verify information with your health care provider before taking action. Any messages or stories shared on this site may be used in other March of Dimes marketing activities.

Donate now!